PACE Transition Navigator - Crohn's and Colitis Canada
Crohn’s and Colitis Canada is the only national, volunteer-based charity focused on finding the cures for Crohn’s disease and ulcerative colitis and improving the lives of children and adults affected by these diseases.
We are one of the top two health charity funders of Crohn’s and colitis research in the world, investing over $135 million in research since 1974, leading to important breakthroughs in genetics, gut microbes, inflammation and cell repair as well as laying the groundwork for new and better treatments.
We are transforming the lives of people affected by Crohn’s and colitis (the two main forms of inflammatory bowel disease) through research, patient programs, advocacy, and awareness.
Visit our website (crohnsandcolitis.ca) for more information.
PURPOSE OF POSITION
If you’re interested in joining a team whose research could potentially change Canada’s youth to adult IBD care model, come join the team as our Transition Navigator.
Crohn’s and Colitis Canada launched the Promoting Access and Care through Centres of Excellence (PACE) program, a network of collaborative IBD Centres of Excellence, that are leading research projects to improve the quality of and access to care for patients with Crohn’s disease and ulcerative colitis, the two major forms of inflammatory bowel disease (IBD).
Led by Dr. Eric Benchimol at The Hospital for Sick Children (SickKids), the PACE Youth to Adult Transition Care clinical trial is developing and evaluating an intervention to improve the care of adolescents and young adults with IBD.
The PACE Transition Navigator will act as the point of contact for PACE Transition Trial participants, along with clinical site teams, who will provide patient-centred care to enhance the experience of patients transitioning from pediatric to adult IBD care. The PACE Transition Navigator will be utilizing an interprofessional, biopsychosocial and patient-focused collaborative approach in supporting trial participants transition from pediatric to adult care.
This position will require working collaboratively with the PACE Transition Trial team, including but not limited to the PACE program Principal Investigators, the clinical site teams, the implementation site teams, other stakeholders, Crohn’s and Colitis Canada’s VP, Research & Patient Programs and Senior Manager, Research Programs
DUTIES AND RESPONSIBILITIES
- Primarily responsible for supporting participants recruited to the PACE Transition Trial assigned programs - provides the administration, management and execution of all the transition intervention program and its multi-modal components, as per the pre-specified plan described in the research protocol and approved by site research ethics boards;
- Serves as a Navigator for patients to liaise with their pediatric IBD care team (physicians, nurses, etc.) and adult IBD care team/other healthcare teams;
- Proactively and collaboratively supports young adult patients and their families, as per the pre-specified plan;
- Acts as a primary source of contact about transition from pediatric to adult care for patients;
- Responsible for assessments of patients' transition from pediatric to adult care for patients;
- Responsible for assessments of patients' transition readiness including but not limited to, physical, social and psychological needs, and tailors educational and skill-building resources for patients according to pre-specified plan;
- Responsible for identifying urgent medical, mental health and social situations and liaising with the health care team for prompt intervention;
- Ensures continuity of care as patients transition from pediatric to adult care, in collaboration with IBD health teams at pediatric and adult clinical sites;
- Communicates regularly with patients, either by telephone, texting or other digital platforms, to ensure that patients can access them with questions or concerns regarding their care;
- Participates as an integral member of the PACE transition intervention program team;
- Reviews data for program evaluation and makes recommendations for program improvement; and
- Integrates research into practice and ensure that best care practice standards are maintained.
- Minimum: Master’s degree in social work with clinical experience or nursing degree;
- A background in/knowledge of health services research, health systems administration and/or the medical field;
- Prior experience with individuals with chronic illnesses;
- Strong active listening skills and ability to demonstrate empathy while remaining professional and respectful;
- Excellent communication, counselling and teaching skills, including the ability to act with tact, diplomacy, professionalism, and handle sensitive information with discretion;
- Experience establishing and maintaining relationships with diverse groups of stakeholders (physicians, scientists, donors, industry representatives, patients, etc.);
- Demonstrated clinical leadership;
- Strong analytical abilities with knowledge and skill in critical thinking and decision-making;
- Excellent organizational skills, including the ability to organize workload, set priorities and respond effectively to competing demands;
- Strong aptitude in computer skills, including but not limited Microsoft Office Suite, REDCap, video conferencing software (Zoom, FaceTime, Teams, etc.), experience with messaging software (WhatsApp, iMessage, Signal, etc.)
- The ability to work both independently and within a diverse team; and
- Self-motivated, ability to work under pressure and meet deadlines.
- Experience as a nurse practitioner or experience providing counselling as a social worker;
- Previous experience with biopsychosocial models of care as either a nurse or social worker;
- Previous experience and/or knowledge of IBD care and education;
- Experience working remotely via virtual platforms;
- Familiar with or interested in mind-body interventions and their role in chronic disease management; and
- French language communication skills.
WORKING ENVIRONMENT AND BENEFITS
- Primarily virtual work environment.
- Extended health and dental employee benefits program.
- Employer matching RRSP program.
- Occasional travel may be necessary.
- Evening and weekends may be required.
- This position is a contract role for 36 months.
HOW TO APPLY
Crohn’s and Colitis Canada provides a competitive compensation package and a rewarding work environment. Interested applicants are asked to submit a PDF of their resume and cover letter indicating salary expectations by clicking “Apply Now” or you will be redirected to Crohn’s and Colitis Canada’s careers page if you are viewing this posting on an external site.
This role will be posted until filled.
We are committed to creating and fostering a diverse, inclusive, equitable and accessible work environment that reflects the Canadian communities that we work with and within. We strongly encourage applicants from diverse backgrounds. We are committed to making our recruitment process accessible to all candidates and provide accommodations upon request.
We thank all applicants for their interest to work at Crohn’s and Colitis Canada; however only those selected for interview will be contacted.